Saturday, 14 April 2018

No talk, no taste

I have just had another spell in hospital. My Motor Neurone Disease has shut down swallowing.
So I now get food through a tube directly into my stomach.
No taste. No texture. But guaranteed nourishment.
And I can no longer speak. But I can use text to speech on my devices to communicate.
How I cope with this decline is what matters.
It is wonderful that I have options such as this, which were not available to my mother when she had MND in the 1980s.

Tuesday, 6 March 2018

Just talk

Jimmy Reed had a great song called Big Boss Man.
One lines goes: Big Boss Man, you just talk, that's all.
Theresa May is a Big Boss Woman